There is a little girl named Taliah who has Fanconi who is not doing too well. She, like you, is 7 and has graft versus host disease. I have been reading what her Grandma has been writing about her condition and it sounds like she might die soon.
There was a story in the newspaper today about people who keep blogs (this thing I am writing) to keep friends and family up-to-date on the condition of someone who is sick. The story told about a Mom who kept a journal about her twin babies who were in the hospital because they were born very early. One of the messages read like one of the babies was going to die, but the next day the Mom wrote how things had improved. Both babies lived. I hope that I read something good about Taliah tomorrow.
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