I have been following the only other FA blogger for months now. I wrote to you about him back in January. He is from the Philippines, which is where Zhenny is from.
The blog is called "Save Jack Simbulan from Fanconi Anemia." Jack's dad was keeping everyone updated on his progress.
This is what he wrote yesterday.
It is very very hard to say goodbye. But it is selfish to keep you with us when you do not seem to get any better. We have given you the best that we could possibly give. We have begged God for mercy countless times. We’re really sorry that our best could not save you. You know we really really tried. And we know you did too. You were such a brave kid, with such tenacity and will to live.
We’re very very proud to be your parents. We feel blessed to have been part of your life. 6 years is better than 0 years. We regret that we were not able to spend a lot of time with you because we were both working. But we are thankful for the nice vacations together: Baguio, Palawan, Tagaytay, Subic, ChiangMai, Singapore, LA. It was money well spent with you.
We were really hoping and praying that we could beat FA. We were ready to beg from people and have in fact started doing that. But this disease is plain cruel. It has robbed you of energy, playfulness and laughter.
We have said to you all the things that you needed to know, especially in our last month in the hospital. You only need to remember that we love you. And even if you go away, that love will not change. Ever. You will always be our baby – the one who went through such odds, the one who has given our family so much joy and laughter in the last six years.
We’d like to say sorry for whatever shortcomings, for sins we may have committed knowingly or unknowingly. Sometimes, we take our role as parents too seriously.
Anyhow, rest our child. Go to God, Jesus and the saints. To heaven where there is no more suffering. We will always love you. Until we see each other again.
Papa and Mama
posted by Juni (dad) & Babs (mom) @ 1:05 AM 13 comments