Wednesday, May 07, 2003

Dear Henry:

This was sent to me and Mom but I think it was really meant for you.

From: "Kelley, Randy C"
To: "Lauriestrongin (E-mail)"
Subject: Thank you Henry
Date: Mon, 14 Apr 2003 10:21:22 -0500

Dear Allen and Laurie,

I don't think you know me but boy I sure know you and Henry. I have been struggling with the right time to write this letter. I am the father of Hunter Kelley. Hunter too has FA. On March 15th 2000 Hunter was diagnosed.

I am not going to tell you the feeling because I think you already know. For a year and a half we searched for answers as to how to help Hunter. We attended a FA Family meeting in Sept. of 2000, mainly to meet Dr. Wagner. While at the meeting we learned for the first time about PGD. We had no idea this opportunity existed and soon found out it didn't' for us. In Oct. 2000 we went to U of Minn. for a bone marrow harvest, Hunter's cellularity at the time was 50%. During this visit we met the Nash's and even went to the Mall of America with them. We wanted so badly to try the PGD but it wasn't available to FA (A) at the time. In Oct. of 2001 we learned that FA (A) had been typed by Dr. Auerbach and that PGD was now available to FA (A) patients. It was about this time my wife (Christie) read your New York Times Magazine article. We immediately decided we had to give PGD a try. After 4 cycles and many ups and downs we got pregnant.

Eggs were implanted on Easter Sunday of 2002. On Dec. 9th Cooper Kelley was born. A perfect match for Hunter. On January 21 Hunter underwent a Sibling Matched Cord Blood Transplant at the U of Minn. Today we are back in Birmingham and Hunter is outside shooting basketball. We realize he is by no means out of the woods, but to this point he is doing great.

The reason for writing this letter is to thank you and especially thank Henry. You see if we had never read that NY Times article we would have never tried PGD. Hunter was to the point he needed a transplant and we didn't have long. You determination to succeed at PGD gave us inspiration.

Henry did not die in vain. Henry is a pioneer that has and is saving Lives everyday. I can only imagine what it is like to loose a son. Hopefully you can find some comfort in knowing without a doubt you and your son helped save our son's life.

The TV show 48 hrs. has followed our story from beginning to end. We are not sure when it will air, if ever. Hopefully it too will help someone see the light at the end of the tunnel.

Thanks Henry Goldberg your sacrifice has saved many.

Randy Kelley
CBM - Kraft Foods

You are the man.


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